Ashley’s Story

An incredible story taking place in the US:

[quote]
Our daughter Ashley had a normal birth, but her mental and motor faculties did not develop. Over the years, neurologists, geneticists, and other specialists conducted every known traditional and experimental test, but still could not determine a diagnosis or a cause. Doctor’s call her condition “static encephalopathy of unknown etiology”, which means an insult to the brain of unknown origin or cause, and one that will not improve.

Now nine years old, Ashley cannot keep her head up, roll or change her sleeping position, hold a toy, or sit up by herself, let alone walk or talk. She is tube fed and depends on her caregivers in every way. We call her our “Pillow Angel” since she is so sweet and stays right where we place her—usually on a pillow.

Ashley is a beautiful girl whose body is developing normally with no external deformities; see photos. She is expected to live a full life and was expected to attain a normal adult height and weight. Ashley being in a stable condition is a blessing because many kids with similarly severe disabilities tend to deteriorate and not survive beyond five years of age.[/quote]

The hubbub is about this:[quote]
The “Ashley Treatment” is the name we have given to a collection of medical procedures for the improvement of Ashley’s quality of life. The treatment includes growth attenuation through high-dose estrogen therapy, hysterectomy to eliminate the menstrual cycle and associated discomfort to Ashley, and breast bud removal to avoid the development of large breasts and the associated discomfort to Ashley. We pursued this treatment after much thought, research, and discussions with doctors.[/quote]
ashleytreatment.spaces.live.com/blog/
wow

just wow :frowning:

jdspeechless, except to say I think they did the right thing.

I think it was right in this case too. Not much change of her ever maturing mentally so I think helping her parents to be able to continue to be able to keep her at home and to care for her outweighed the negatives.

I agree, definitely the right thing to do.

Poor girl. I also agree.

I couldn’t wish upon anyone the kind of difficulties her parents have, and I couldn’t judge anyone in that situation for the choices they have to make.