[quote=“BamBam”]I have seen a GI specialist. I have had xrays and ultra sound. Other than the ulcer nothing else. I am thinking about another endoscopy, but that was one of the worst days of my life when I did it a few years ago.
Keep the ideas coming. Thanks.
I know something about this (the tests you need), because I’ve suffered a lot from a similar condition, Crohn’s disease.
About endoscopy - I know how horrible it is, but it actually doesn’t have to be. Normally, in Taiwan they give 50mg of Demerol plus 1 vial of Valium. The Demerol is for pain, the Valium so you won’t remember anything. You’ve got to insist on a bigger dose. Last time they did me, I made a fuss and got a triple dose of Valium. Even better would be midazolam (trade names: Versed and Dormicum) - it’s kind of a super Valium, though it’s effects are more short-lived (so you may need more than one shot during the procedure). Anyway, I’ve had the endoscopy twice, one time with midazolam and one time with Valium - I absolutely cannot remember the midazolam experience, and the Valium one I remember bitching until they shot me two more times which finally made me shut up and drift off so I didn’t know what was happening.
So in other words, find a doctor who will be generous with the drugs, especially midazolam
One other kind of test that you haven’t mentioned is barium-swallow x-rays. You swallow a bottle of barium (white chalky stuff), and x-rays are taken over a period of several hours as the barium cocktail works it’s way down through your digestive system. It can paint a pretty accurate picture of your insides. A variation on the theme is barium-enema, but besides being no fun, it doesn’t reach any further up than the large intestine (and your problem could be small intestine). A disadvantage of the barium swallow is that you will be shitting out this white stuff for the next couple of days, and should not eat a lot (but should drink a lot) to get rid of it.
Also - you say you feel bloated, but is there any pain? Like cramping in the intestines, that kind of thing? Anything else like diarrhea, constipation or vomiting? Is it worse after eating, or drinking tea/coffee? A little info on that could also shed some light on your condition.